Is the week over yet?

What a week! and it is only Wednesday.  There have been some pretty bad thunderstorms so the temperature and humidity keep fluctualting so much that we are catching minor colds. 

Yesterday Angelica had a stomach emptying study and we were at a hospital that apparently hasn't dealt with children with her difficulties before.  I even told them that I didn't have much trust in them. 

We did finally get her new mattress though which has been a month long saga of them coming out, it not fitting and them taking it back to do modifications.  She had a very restful sleep (it is a Tempurpedic).

Then....today there was an accident just a couple blocks from here that killed a child waiting for the bus.  I knew the child had to go to my childrens school because that is the only elementary school that services this area.  Unfortunately, it was someone in my son, Christopher's first grade class.  I was very upset by the news.  Christopher does have a tendency to get very upset about things.  He is autistic and very sensitive.  He even got upset because he didn't get his flu vaccine (they were giving them out at school).  So, I will wait until the end of the day to see how he took the news.  The school did call and I gave them a heads up about it. 

On a good note, Angelica's school called yesterday and informed me that they are not administering the flu mist. I was upset when I got a notice that they were going to administer the mist at school and I thought it was negligent to do this in a school with so many immunocompromised children.  I told them what I knew of the mist and the fact that it sheds.  Well, apparently, after speaking to me they did some research, spoke to the health department and even called the CDC and after confirming the information I gave them they had come to the decision to only allow the injectable vaccine and none of the mist will be brought into the building.  YAY!!  Somebody listened!

Well, that is enough for now.

Starting out

Well, I haven't been on in awhile.  So much has happened.  We bought a house and moved from NC to FL.  Angelica loves the beach.  We love our new house.  It is open and pretty.  Very easy for Angelica to be a part of the family wherever we are in the house. 

There have been some issues such as the bathroom was not as easy to adapt as we thought.  Also, we severely downsized from our previous home so we are feeling squeezed up.

So, after about 5 months we took the plunge and purchased an empty lot across the street from the Gulf of Mexico.  I have never built a house but I am a control freak so this should be quite an adventure.

I haven't forgotten about the compensation program.  I am trying to meet people and network so I can eventually get something done.  Politics is often more about who you know than what you want done.

Now that this is a bit more generalized, I anticipate having a lot more to contribute.  I have a lot to share about Angelica's progress.  her life has changed quite a bit since we moved.  Bye for now~