Monday, February 9, 2009

It has been a long time...

Well, it has been a long time. Mostly because I have been dealing with my own demons. All of this mess finally wrapped up and it was a ridiculous and time consuming process. The end result is that I am more angry than ever and am having a bit of trouble dealing with my pain and anger. Add that to the holidays and everyday life and it is not a good mix.

Angelica also had a surgery during that time. She had a VNS implanted which is a Vagus Nerve Stimulator. It will, hopefully, assist with controlling her siezures and at the very least allow her to come off of one of her siezure meds. It was a fairly easy procedure. Even after all that has occurred she is a fast healer and is very healthy.

Now all we need to do is get her dislocated hip corrected and we will be on the path to pain free wellness once again. I did take her for a second opinion. What a waste since I found out that he is in the same practice and there was no way in the world he was going to go against the original doctor. He was also not very nice.

We had contemplated a move to Florida. We were actually picking a house out and had a job and everything but I found out that there is only one specialist of each at the nearest children's hospital, which was two hours away. For most people this wouldn't be a problem but when a vaccine injury is involved you need to be choosy and ensure that you have an understanding doctor since so many doctors deny that these reactions even occur. I couldn't even secure a phone call/consult with the doctor and I tried. If he is that busy then my children would not get the attention they deserve. Unfortunately, Angelica is not my only special child. So I am in the neurologist office quite a bit and the last thing I need is a rushed and innattentive doctor. I was heartbroken and even cried. The only place Angelica is truly happy and relaxed is when we are at the beach and it was very important to me to live in the happiest place possible for her. That, too, made me angry. Even something as simple as a move ended up being so complicated and stressful and in the end the decision was made to stay where we are, with doctors that we trust.

I need to go for now but am redidcating myself to this. I know there are some that have been checking back in and I have greatly disappointed them and I am so sorry!

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