Well, getting sick on weekend when you have eleven kids is not easy! But I am on the mend.
I hope most of you were able to feel my outrage towards the hospital staff and their treatment of me, not to mention ignoring a diagnosis in order to promote their own agenda: That we were guilty of harming our precious baby just because we had six other children, regardless of what all the medical evidence stated.
Back where I left off with the hospital on a witchhunt against my family.
The staff had determined that vaccines did not have any other reactions other than fussiness and a fever. It was not possible for my daughter to end up in her current state from some "baby shots".
They disregarded all of the medical evidence, even that of vaccine injuries.
Finally, the last week was drawing to a close and we were arranging for discharge. I could not wait to get out of there. They began going over the discharge plan, how many times a week she needed each therapy, what other doctors she would need to see, oh and the fact that I could not return her to her daycare.
To give a little background, we had been with this daycare for years. I have moved several babies from the infant room on up and it was where Angelica was with her siblings before the vaccine reaction.
I had discussed with the daycare what had happened to her and they were more than happy to take her back. They were aware that she would need therapists to have access to her on a regular basis. I felt it was important to remain around typical developing children in order to have more progress.
Well, the hospital did not like my decision. At this point Angelica was the same as a newborn. She has no medical equipment, nothing extra, she just survived a major brain injury but on the exterior you would never be able to tell.
I recieved a call two days before discharge from the daycare and they told me that the hospital called them and asked them if they were fully aware of what they were getting themselves into. They said my baby was deaf, blind, and basically nothing but a vegetable. The told them that she would require constant nursing care, could they provide that?
Of course they could not so they called me and said that if all of those things were true she would not be able to return. I explained very thoroughly her medical issues and explained that I was very angry with the hospital and their blatant violation of privacy. Once they understood her condition (or lack thereof) they agreed they would have no problem taking her. I went to the nurses station and asked them who and why someone had called.
That is when they went over her discharge "plan".
I had no problem with the therapies, doctor appointments, etc. But they added on requirement for a special needs daycare, of which I had few choices.
They told me that if I did not comply then DSS would take Angelica away from us.
None of her other doctors felt the need for this requirement just the one that "knew we were lying".
Well, I thought it better to agree just to get her out then I will fix it.
The "special needs" daycare was awful! There wasn't even room to walk between the cribs. I don't know how they even got licensed as such a daycare but it was not a nurturing environment. There wasn't even any space for her therapists to come and work with her. I did fight it and with her doctors help we eventually got her placed back into her previous daycare with her siblings.
We were getting followed by DSS since the hospital made such grand claims against us.
I was grateful every day, even more than before, that she survived because I am most certain that we would have been charged with killing her if she had passed away.
My little girl was born with some incredible strength to be able to survive through all of her ordeals.
I did make the attempt to return to the peds office where she recieved the vaccines but the doctor and the staff all insisted that we were wrong and they had no idea how to care for her with her disabilities so we made the decision to get a new ped.
My choice was actually the ped that worked so hard and fought for so long to save her in the ER.
For insurance purposes they have ot give a label because vaccine injury isn't dignosis code so she was given a diagnosis of cerebral palsy.
Her neuro still wants us to pursue the vaccine compensation program. He has exhausted every genetic testing, she even had to undergo a muscle biopsy. He is trying to rule out every single alternate diagnosis so he said it would be easier for us once we get the process started.
After this post I am pretty much going to give an overview of the time between then and now.
A lot has happened but also so little has happened, as you will see.
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1 comment:
Oh my word mama. I am hanging on the edge of my seat. I am so sorry that you were treated this way.
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